Hundreds show up for Regina’s first-ever walk for congenital adrenal hyperplasia, a rare genetic disorder
Ten-month-old Carlin Foley looks like any normal happy and healthy baby, but unlike babies, every eight hours he needs medicine to help him produce hormones to keep him alive.
“He has CAH Congenital Adrenal Hyperplasia via the newborn screening he has at the beginning of life. So we found out at four days old… So he has had a few hospitalizations, but we have never heard of CAH before,” Carlin’s mom Mindy Foley said.
One in 18,000 babies are diagnosed with the genetic disorder. Yet many people haven’t heard of it. That’s why Foley wanted to organize Regina’s first-ever Carlin and Blake’s 1st Annual Fun Run for CAH.